NCG developing service for people with Prader-Willi Syndrome

National Care Group (NCG) is developing a specialist residential scheme with input from Prader-Willi Syndrome Association UK (PWSA UK).

The development in Brixham, Devon, will be the first dedicated PWS residential service in the South West. It will enable up to six people with PWS to live independently, remain close to family and friends, and receive the right support within their local community.

It will create at least 15 roles for social care employees. The team delivering support will join Oaklea Care, a local adult social care business based in the county, owned by NCG.

Development of the service is part of NCG’s growth strategy and its aim to deliver provision that addresses unmet need.

‘By working with our partners at the Prader-Willi Syndrome Association UK, we are ensuring the service is shaped by specialist expertise and that our colleagues receive the training needed to empower people to achieve positive outcomes. National Care Group has proudly signed the Prader-Willi Syndrome Association’s charter, pledging our commitment to delivering safe, effective, compassionate and person-centred care and support,’ said Belinda Robinson, director of development at NCG.

‘We look forward to welcoming the first people moving in later in the year once the regulator has completed all of its registration processes.’

PWS is a rare and complex genetic condition affecting approximately one in every 2,000 births in the UK. It is caused by an abnormality on chromosome 15, which affects muscle tone, development, appetite regulation, emotional regulation and learning.

According to a global study published in the Orphanet Journal of Rare Diseases, full-time, specialised care services can lead to improved outcomes for people with PWS.

Jackie Lodge, PWSA UK chief executive officer, said: ‘We know that families across the UK are struggling to find suitable places for their loved ones with Prader-Willi syndrome to live once they are adults. There is now compelling evidence that living in specialist PWS services can significantly improve outcomes for adults with PWS; however, the availability of these services remains very limited. We are frequently seeing people having to move long distances from their home and family to access appropriate care.

‘We are pleased to work with National Care Group to establish a new service in the South West and to collaborate to ensure the home, care and support services are tailored for the specific needs of people with PWS.’